Living with chronic illness: RA, PCOS & Co
I have several chronic illnesses and disabilities. The newest one is PSOC (polycystic ovary syndrome) and the most extensive one is RA (rheumatoid arthritis). I also have quite a few other issues like issues with breathing and lung issues because of RA, joint pain and stiffness - especially in my entire legs, so I have to have a kind of joint protection for my knees and ankles sometimes. Also due to RA. Now I'm also constantly cramping and bleeding like a fountain because of my newly discovered PCOS.
I used to have no periods or like very irregular, small amounts of sporadic ones. I could've lived with that. But since the late summer, I've problem with constant blood with just maybe two weeks in between each time. Now this time I've bled for more than 3 weeks, and do you know what the doctor and the gynaecologists do? Nothing. Nothing. They ask me to wait for my next control in 3-6 months. Are they insane? Am I supposed to bleed for that long more? I'm already completely drained because I've had so many bleedings since JUNE of this year. The health care system in Sweden is a joke. I feel so helpless and hopeless.
It's not just blood either. Blood keeps me thinking about sexual assaults because I've bled through most of the abuse I've went through, or getting some kind of bloody wound inside. Both as a kid and as an adult. So bleeding like this is only something that gives me flashbacks and reminders for assaults as well. And the doctors don't even care. They barely looked at the fact that I also have C-PTSD (complex posttraumatic stress disorder) and treated me horribly both in examining me and in not doing anyththing for the constant stream of blood. I'm so mad! No I'm becoming insane soon!
Time is now 5:30 am and I cannot sleep. I just went to the toilet to empty yet another full menstrual cup. No wonder I hated to be a woman a few years ago because of all the abuse. Now when I finally starts to like it a little, I hate it again.
Tried to draw a chibi to cheer myself up a little. It didn't help at all, but I insert it here
/Trix